Sepsis Awareness Month: The Role of Hospice in Managing Sepsis at End of Life
Sepsis, a life-threatening organ dysfunction caused by a dysregulated host response to infection, is a significant concern for individuals with terminal illnesses. As we observe Sepsis Awareness Month in September, it is crucial to recognize the critical role hospice care plays in managing sepsis at the end of life. Hospice care ensures that terminally ill patients maintain dignity and comfort in their preferred setting during their remaining time.
Understanding Sepsis in Terminally Ill Patients
Sepsis affects approximately 1.7 million adults annually in the United States, leading to nearly 270,000 deaths . Terminally ill patients are particularly vulnerable to sepsis due to their weakened immune systems and frequent hospitalizations, which increase the risk of infections. The mortality rate for sepsis in this population is exceedingly high, necessitating a compassionate and comprehensive approach to care .
The Role of Hospice Care in Managing Sepsis
Hospice care provides a multidisciplinary approach to managing sepsis, focusing on symptom control, pain management, and psychological support. The primary goals are to enhance the quality of life and ensure comfort for both patients and their families.
Symptom Management: Hospice care teams are skilled in recognizing and managing the symptoms of sepsis, such as fever, chills, rapid breathing, and confusion. They employ evidence-based practices to alleviate these symptoms effectively.
Pain Management: Pain is a common and distressing symptom in patients with sepsis. Hospice care utilizes a range of pharmacological and non-pharmacological interventions to manage pain, ensuring patients remain as comfortable as possible.
Psychological Support: Sepsis can cause significant anxiety and distress for patients and their families. Hospice care includes counseling and support services to help them cope with the emotional burden of the illness.
Reducing Hospitalizations: By providing intensive and personalized care at home or in hospice facilities, hospice care can reduce the need for hospitalizations, allowing patients to spend their final days in a familiar and comfortable environment.
Timing of Hospice Referral for Sepsis Patients
Early referral to hospice care is essential for patients with sepsis and a terminal diagnosis. Indicators for hospice referral include:
Repeated hospitalizations for infections or sepsis.
Significant decline in functional status.
Escalating need for symptom management.
Patient and family preference for comfort-focused care over curative treatments.
Hospice care is integral to managing sepsis in terminally ill patients, providing a dignified and compassionate approach that emphasizes comfort and quality of life. Consider an early hospice referral for patients with sepsis to ensure they receive the most appropriate and effective care. As we mark Sepsis Awareness Month, let us reaffirm our commitment to improving the lives of those affected by this severe condition through timely and specialized hospice care. Call us today, we are only a phone call away.
Mayr, F. B., Yende, S., & Angus, D. C. (2014). Epidemiology of severe sepsis. Virulence, 5(1), 4-11. doi: 10.4161/viru.27372
Pain Awareness Month: The Critical Role of Hospice Care in Managing Pain and Terminal Agitation
Pain and Terminal Illness: Pain is a prevalent symptom in terminal illnesses, with studies indicating that up to 80% of cancer patients experience pain at some point during their illness . Effective pain management is essential to improve the quality of life for these patients. Hospice care provides a comprehensive approach to pain management, utilizing a combination of pharmacological and non-pharmacological interventions tailored to individual patient needs.
Pharmacological Interventions: Hospice care employs various medications to manage pain, including opioids, non-opioids, and adjuvant analgesics. Opioids remain the cornerstone of pain management in terminal illnesses due to their efficacy. However, there is often hesitation from families regarding their use due to myths and misconceptions. It is important to communicate that when used appropriately under medical supervision, opioids can significantly enhance comfort without hastening death .
Non-Pharmacological Interventions: In addition to medications, hospice care incorporates complementary therapies such as relaxation techniques. These interventions can help alleviate pain and enhance overall well-being, providing a holistic approach to patient care.
Managing Terminal Agitation
Terminal agitation, characterized by restlessness, confusion, and anxiety, affects many patients nearing the end of life. It can be distressing for both patients and their families. Hospice care professionals are skilled in identifying and managing terminal agitation through personalized care plans that may include:
Medications: Sedatives, antipsychotics, and anxiolytics can help manage symptoms of agitation and anxiety.
Environmental Modifications: Creating a calm and soothing environment can reduce triggers of agitation.
Emotional and Spiritual Support: Providing support to address psychological and spiritual distress can significantly reduce agitation.
Reducing Hospitalizations
Frequent hospitalizations can be traumatic for terminally ill patients and their families. Hospice care focuses on providing comprehensive care at the place the patient calls home, thus minimizing the need for hospital admissions. Research has shown that patients receiving hospice care have fewer hospitalizations and emergency room visits compared to those not enrolled in hospice programs .
Addressing Myths about Pain Medications in Hospice Care
One of the barriers to hospice referrals is the misconception that pain medications, particularly opioids, are harmful or hasten death. It is crucial to educate families that:
Opioids, when used correctly, are safe and effective: They are essential for managing severe pain and improving quality of life.
Hospice care focuses on comfort, not hastening death: The goal is to ensure the patient’s comfort and dignity.
We are Here to Help
Hospice care is vital in managing pain and terminal agitation, ensuring that patients can spend their final days in comfort and with dignity. Let’s talk about your patients who can benefit from the pain and symptom management techniques that hospice can provide.
References
Portenoy, R. K., & Ahmed, E. (2018). Cancer pain syndromes. Hematology/Oncology Clinics of North America, 32(3), 371-385.
Breivik, H., Cherny, N., Collett, B., de Conno, F., Filbet, M., Foubert, A. J., … & Dow, L. (2009). Cancer-related pain: a pan-European survey of prevalence, treatment, and patient attitudes. Annals of Oncology, 20(8), 1420-1433.
Fine, P. G., & Portenoy, R. K. (2004). A clinical guide to opioid analgesia. The Journal of Pain, 5(2), 79-91.
Quill, T. E., & Abernethy, A. P. (2013). Generalist plus specialist palliative care — creating a more sustainable model. New England Journal of Medicine, 368(13), 1173-1175.
Connor, S. R., Pyenson, B., Fitch, K., Spence, C., & Iwasaki, K. (2007). Comparing hospice and nonhospice patient survival among patients who die within a three-year window. Journal of Pain and Symptom Management, 33(3), 238-246.
Gozalo, P. L., Teno, J. M., Mitchell, S. L., Skinner, J., Bynum, J., Tyler, D., & Mor, V. (2011). End-of-life transitions among nursing home residents with cognitive issues. New England Journal of Medicine, 365(13), 1212-1221.
Hydration Motivation: The Importance of Staying Hydrated
We don’t often think about the importance of staying hydrated. We may go for hours and hours without a sip. We may wait until we’re thirsty to get a drink.
Generally, you should drink ⅓ of your weight (in pounds) in ounces of water daily. For example, if you weigh 150 pounds, drink 50 ounces of water (or other hydrating beverages) daily.
Many health problems and medications can affect the amount of water we need, so it’s best to talk with your doctor about your specific needs.
Why is hydration important for seniors?
As we get older, our ability to regulate the amount of water in our body declines. What’s more, our lifestyle and habits may change over time. We may have been more active, naturally drinking more water. But now we don’t exercise as much or at high intensity.
We may have commuted to work every day with a drink in the cup holder. We sat at our desks with a tumbler of water within reach, a constant reminder to take a drink.
For seniors, we need to maintain a 55% level of water in our bodies. Dehydration, even in mild cases, can harm health and exacerbate existing medical conditions. Symptoms like confusion, dizziness, fatigue, joint pain and constipation can result from inadequate hydration.
Staying hydrated aids in healing
The importance of staying hydrated extends beyond everyday life for seniors. It becomes even more critical when recovering from an illness, injury, or medical procedure. During these times, the body requires additional support to heal and regain strength and adequate hydration plays a vital role.
Some of the ways hydration helps you heal include:
Facilitating tissue repair
Reducing inflammation
Flushing out toxins or byproducts from medications
Managing side effects of medications
Increasing energy levels
Improving mobility
Tips for staying hydrated during recovery:
Set reminders
Eat hydrating foods
Drink hydrating beverages
Keep fluids easily accessible
Bring water with you wherever you go
Importance of hydration in summer
Many of us take multiple medications, some of which may cause an increase in urination. What’s more, many chronic health conditions, like diabetes and kidney disease, can contribute to this loss of fluids. Losing too much fluid is even more dangerous in summer.
During the hotter months, the combination of higher temperatures and perspiration can lead to a greater risk of dehydration. Heat-related illnesses like heat exhaustion and heat stroke are also more common in seniors and can be life-threatening.
Look for shade, go into an air-conditioned building, and avoid prolonged exposure to heat and sun when temperatures and humidity rise.
Hydration is not just about water
Drinking enough water isn’t the only way to prevent dehydration. Other hydrating beverages and foods are also options.
Foods like fruits and vegetables with high water content can help also us stay hydrated: strawberries, tomatoes, watermelon, celery, and cucumbers. Beverages like herbal teas can increase hydration too. But it’s essential to limit caffeine and alcohol. They can have a diuretic effect.
Remember that staying hydrated is important at any age but is critical for seniors. Staying hydrated gives our bodies the necessary support to heal, manage medications, boost immune function and regain energy and mobility. Be sure to talk with your doctor about their hydration recommendations for your needs.
Watching someone you love suffer from Alzheimer’s or another memory debilitating illness is incredibly difficult, and it can be even more challenging to decide when it’s time to consider hospice care. Here, we are sharing five signs it may be the right time to consider the extra support of hospice care for an Alzheimer’s patient.
Physician determines they are at or beyond stage 7 of the Functional Assessment Staging Scale
The Functional Assessment Staging (FAST) Scale is a tool used to determine if changes in a patient’s condition are related to Alzheimer’s disease or another condition. If due to Alzheimer’s, the changes will occur in sequential order. Alzheimer’s disease-related changes do not skip FAST stages.
Unable to ambulate independently
This means a person is no longer able to get around on their own. For example, they require assistance getting from room to room.
Requires assistance to dress or bathe
Without assistance, you may notice they put their shoes on the wrong feet or their day-time ‘street’ clothes on over their pajamas. They are also unable to bathe without assistance.
Becomes incontinent
This includes urinary or fecal incontinence or both.
Unable to speak or communicate
This may begin as the patient only saying 5-6 words per day and gradually reduce to only speaking one word clearly until they can no longer speak or communicate at all. This will also include the inability to smile.
Why Choose Hospice
Hospice care is for patients with a life limiting illness and a life expectancy of six months or less. The main focus is to manage pain and symptoms and ultimately keep the patient comfortable. When you choose hospice for your loved one, their care team can help you to understand what to expect in the final stages of Alzheimer’s. They will also provide support to you and the rest of your family throughout the end-of-life process.
If you would like more information on hospice care for Alzheimer’s patients, please contact us. We are here to answer any questions you may have.
May Is Nurse Appreciation Month
This May, join us in celebration of America’s 4.4 million registered nurses who make a touching difference in the lives of patients and their families. Exceptional nurses often have a true passion for helping others, backed by compassion and empathy.
In honor of this month, we express our appreciation for home health nurses, hospice nurses, and nurses who work in the skilled nursing facilities that partner with us as hospice and home health providers.
Nurses make a profound impact in improving the quality of life of individuals in skilled nursing facilities, hospice care, and home health care. We invite social workers, medical professionals, and anyone who has been touched by a nurse to celebrate Nurse Appreciation Month with us. This is your reminder to thank your nurses and show you appreciate their “special touch”.
Rehabilitative Nursing Care
Nurses working in skilled nursing facilities serve a vital role in helping individuals get back on their feet after an injury or illness. While in rehabilitative nursing care, patients are supported by nurses who are committed to helping them improve their quality of life and regain strength during recovery.
Often, it is because of the support from nurses in rehabilitative nursing care that individuals can safely return to their homes for ongoing support from home health nurses. This allows individuals to continue recovering from the comfort of their own homes.
Home Health Nursing
Throughout the month of May, we also recognize and show we appreciate the exceptional home health nurses that support patients in their homes. Home health nurses play a vital role in supporting an individual’s road to recovery as they strive to regain independence and autonomy in the home. Home health staff support the holistic health of individuals beyond physical care by also providing social and emotional support.
Hospice Nursing
Hospice nurses have a special role in the lives of patients diagnosed with a terminal illness and their families. Nurses providing end-of-life care through hospice services help reduce unnecessary pain and suffering, making individuals as comfortable as possible in their final months or days of life. In addition, hospice nurses generously share their skills and compassion to provide supportive care that improves an individual’s quality of life, developing strong bonds with patients and their families.
Often, hospice nurses go above and beyond the call of duty, showing exceptional compassion for those nearing the end of their life. Not only do hospice nurses support an individual’s wishes, but they also provide support resources for family and friends during difficult times. Most families never forget the lasting impact the nurses made during an incredibly challenging period in their life.
Thank Your Nurses This Nurse Appreciation Month
Nurses in skilled nursing facilities, hospice care, and home health nurses demonstrate admirable qualities such as compassion, patience, and empathy. On behalf of our team and our partners, we honor the champions that have dedicated their careers to improving the lives of others. We couldn’t do it without you!
Kidney Health Awareness Month
Did you know that March is National Kidney Health Awareness month? Each March helps raise awareness about promoting good kidney health and highlights how home health and hospice care can help support those with kidney disease.
Sadly, kidney disease is often referred to as a silent disease that can manifest without the presence of many symptoms in its early stages. Often, individuals diagnosed with Chronic Kidney Disease (CKD) are unaware of their condition until it has advanced to later stages.
Role of Kidneys in the Body
Before you can understand ways to protect your kidneys, it’s vital to understand the critical function of kidneys in the body. Kidneys help regulate the body’s fluid levels, filtering out waste and toxins from the bloodstream. In addition, your kidneys release an essential hormone in blood pressure regulation. Kidneys also serve many secondary purposes, such as activating Vitamin D to maintain healthy bones and keeping blood minerals like potassium and sodium in the correct balance.
With all these vital functions in mind, it’s clear that protecting your body’s kidneys is crucial to good health.
Protecting Your Kidneys
Promoting good kidney health starts with protecting your kidneys. First and foremost, drinking enough fluids daily keeps your kidneys functioning effectively. Adults who do not have a diagnosed kidney condition should drink about 9 to 13 cups of fluid daily, according to the National Kidney Foundation.
Your diet and lifestyle are also quite important to maintaining good kidney health. By eating a well-rounded diet and maintaining a healthy body weight, you’ll help protect your kidneys from many factors that contribute to kidney damage. Aim to get at least 30 minutes of physical activity every day. It may take time, but developing a regular exercise routine can go a long way in helping support your overall health, as well as your kidney health.
Drinking too much alcohol can also wreak havoc on your kidneys and put them at risk for kidney disease. Consume alcohol in moderation. In addition, smokers are at an increased risk for kidney disease.
Home Health and Hospice Services
If you or a loved one has received a kidney disease health diagnosis, there is help. Our team offers supportive in-home services for individuals in need. We review services for individuals on dialysis on a case-by-case basis. Some individuals can continue dialysis treatments while also receiving supportive home health or hospice services. To learn more about how home health and hospice services can help you or a loved one, speak to a representative to discuss your unique situation.
Learn More About Dialysis and Hospice Care
Interested in learning more about the home health or hospice services available to individuals receiving dialysis? Contact us today.
Understanding Palliative Care Compared to Hospice Care
Some older adults and people with serious illnesses, unfortunately, experience the end of life in certain healthcare settings that do not align with their desired wishes. If you have a serious illness or are a caregiver of someone planning end-of-life care, knowing the difference between palliative care and hospice care can help you make an informed decision when the time comes to transition to one of these healthcare settings.
Palliative care is a form of care that focuses on improving your quality of life and that of your family when you are living with a serious illness. It focuses on your whole-person health rather than only on your condition. If you are receiving palliative care, your treatment plan may focus on reducing symptoms of your illness and on improving secondary conditions such as depression, sleep deprivation, and side effects of medications.
Palliative care may be given in various healthcare settings, such as at the hospital, a residential care facility, or your home. Anyone can receive this type of care regardless of age or the severity of their condition.
If you receive palliative care, you may work with and be treated by various healthcare professionals, including doctors, nurses, social workers, pharmacists, physical therapists, counselors, and nutritionists. If you need spiritual care, your palliative care team may even include a chaplain. The healthcare professionals that make up your palliative care team will depend mainly on your recovery needs and level of care.
Studies show that palliative care offers many benefits, including:
Reduction in pain, nausea, and shortness of breath
Improved communication among patients, their loved ones, and their healthcare providers
Increased emotional support
High-quality care that aligns with the patient’s wishes
Reduction in stress
Increased confidence surrounding decision-making related to care
Ability to meet the emotional and spiritual needs of the patients and their loved ones
Hospice care focuses on improving your comfort and quality of life when you are nearing the end of your life. This type of care is usually given in circumstances in which an illness continues to progress despite treatment or when the patient chooses not to receive certain treatments. Hospice care is similar to palliative care in that it provides comfort care and support for the family. However, treatments are not given to improve the illness.
Like palliative care, hospice care can be given in many different healthcare settings, though it is most frequently given at your home, where you can be most comfortable and spend quality time with your loved ones. In addition, it is typically given when your healthcare provider believes you have no more than six months to live. Some benefits of hospice care include 24/7 access to nurses and healthcare workers who can address and relieve symptoms and side effects and access to medical equipment and medications that can reduce your discomfort.
Many of the same types of healthcare professionals that make up a palliative care team will also be part of your hospice care team. This includes doctors, nurses, social workers, chaplains, and volunteers who dedicate their time to giving you the support you need and making you feel as comfortable as possible during your final months.
To be eligible for hospice care, you will discontinue aggressive treatment efforts to combat your terminal illness (such as experimental surgeries, aggressive chemotherapy, or other treatments that require prolonged hospitalization and recovery). However, you may continue to receive treatments for other conditions, such as antidepressants to treat depression or insulin medicines to control Diabetes.
Comfort care and end-of-life care are both terms that describe the type of care you receive when you are near the end of your life and are no longer receiving treatment for your illness. It is highly similar to palliative care in providing you with whole-person care that focuses on your physical, social, emotional, and spiritual health. Comfort care and end-of-life care may include palliative care or hospice care, or a combination of both.
Sometimes, palliative care is given as part of hospice care, and both types share many similarities. For instance, the goal of both palliative and hospice care is to improve your quality of life and help you find relief from painful and severe symptoms and side effects of treatment. Both types of care also focus on whole-person health. However, there remain many differences between palliative care and hospice care.
Some of these differences are:
Palliative care can be given to anyone with a serious illness, regardless of the stage of their disease. In comparison, hospice care is typically only given when a person has less than six months to live and is at the end of their life.
Palliative care can be given simultaneously when the patient receives other treatments for their condition, such as chemotherapy or radiation therapy. Hospice care is usually given when treatment for the illness has stopped, and the goal of care is to manage the patient’s symptoms for the remainder of life.
The healthcare professionals on a palliative care team work separately from the patient’s primary care team that is treating the illness. In comparison, the healthcare professionals on a hospice care team handle the majority of the care and collaborate with the patient’s primary care team as necessary.
You may want to consider palliative care if you or your loved one has a serious illness or chronic condition that requires long, intensive care or that causes severe physical symptoms and/or emotional distress. For example, cancer, heart disease, AIDS, and kidney failure are some of the many conditions that can benefit from palliative care.
Additionally, palliative care may benefit you if you:
Want relief from severe physical pain you are experiencing due to your illness
Are experiencing emotional pain or psychological conditions that you are unable to control
Want to continue to receive treatment for your condition
Want tips and guidance on how to effectively manage your condition
Need guidance with choosing the best treatment
Need help understanding your illness
Want to receive treatment at home or outside of a traditional hospital setting
Have loved ones who are involved with your treatment
Need help transitioning from one treatment setting to another
A person may transition from palliative care to hospice care if their doctor thinks they have no longer than six months to live. Sometimes, it can be difficult for doctors to predict exactly how long it will take for a particular disease to run its course or how long a person has left to live if their health is in decline. In these circumstances, it’s important to consider how transitioning to hospice care could improve your quality of life during your final months.
According to the National Library of Medicine (NLM), doctors should strongly consider referring chronically ill patients to hospice care if they spend more than half their time in bed, are unable to function efficiently, and are experiencing both physical and psychological distress. The NLM adds that hospice referrals are usually necessary when the patient’s condition has progressively declined to the point that their highest priority is to take control of their healthcare and achieve the greatest possible comfort in their homes as they near the end of life.
Talk to your doctor if you think you may need hospice care but aren’t sure when you should transition out of palliative care. Your doctor can talk to you at length about your options and the benefits of transitioning to hospice care based on your condition and unique circumstances.
Taking advantage of hospice care as soon as it’s needed could result in access to quality care and lots of extra quality time to spend with your loved ones. Additionally, studies show that patients who plan their care in advance are more likely to be satisfied with their care, given how they can make decisions that align with their end-of-life wishes.
Consult with your healthcare provider if you or your loved one is interested in learning more about palliative care or hospice care. Your doctor can refer you to a palliative or hospice care specialist who can answer all your questions and help you determine which of these services may be more ideal.
Palliative care and hospice care are covered by many major health insurance providers, including Medicare. The exact benefits covered will vary based on your health plan. Benefits covered may include medical equipment and supplies, skilled nursing care, bereavement support, and medications to provide comfort, among many others.
Hospice At Your Side has resources for home health and hospice services throughout the United States. Specialty services we offer include diabetes care, orthopedics, and pain management. Call us today to learn more about our many home healthcare services.
It’s time to speak up about breast cancer, and the month of October is dedicated to doing just that. As the most common form of cancer, it’s likely that someone in your life whom you care for deeply has been diagnosed with breast cancer. Given how prevalent breast cancer is and the repercussions it has on individuals and families affected, this month is a time to rally together and raise awareness about it.
Breast Cancer Statistics
In the United States, more women die from breast cancer every year than any other form of cancer. It’s currently estimated that 1 in 8 women in their lifetime will be diagnosed with an invasive form of breast cancer. Two of the greatest risk factors of getting breast cancer are female gender and older age, though men and younger women can get it as well. The statistics are alarming, and a diagnosis can feel daunting and isolating, whether it’s yourself or a loved one or family member who is receiving it. Fortunately, breast cancer research continues to thrive, which has led to improvements in screening processes and treatment success. These improvements have been given some of the credit for the slightly decreased death rate from breast cancer over the past several years. In order to take further advantage of the strides we’ve made in battling breast cancer, we must continue to educate our communities about the screenings and treatments available.
Self-Monitoring for Changes
While there is no way to guarantee prevention of breast cancer, it is recommended that all adult women perform a breast self-exam monthly. This is a great way to self-monitor for any changes or abnormalities that may occur in the breast tissue. As you age, this becomes an even more important habit as age is one of the main risk factors. It is important to note that not every growth or lump felt in the breast tissue is a cancerous mass. Some non-cancerous masses are abnormal but do not grow outside of the breast tissue. While these lumps do not innately pose a risk, some of these growths can increase a women’s risk of getting breast cancer down the road. Any abnormality or change in your breast tissue that you notice or feel should be examined by a health professional immediately. Just under half of women diagnosed with breast cancer were diagnosed after noticing a lump during a self-exam, so the importance of this routine cannot be overlooked. In addition to regular self-exams, maintaining a healthy weight through exercise and a nutritious diet is another important way to reduce your risk of breast and other cancers.
Receiving a Breast Cancer Diagnosis
Should you receive a diagnosis of breast cancer, take the time to find a team of doctors whom you are comfortable with and trust with your care. This team can include an oncologist, or cancer doctor, a surgical oncologist, a radiologist, a case worker, a registered dietician who specializes in cancer nutrition and possibly several other specialty providers. These individuals will be with you, alongside your personal support system, to make sure you receive the best care available from diagnosis on. Treatments and interventions will differ depending on the type of breast cancer you are diagnosed with and your doctors will help you navigate all of the options and should use their expertise to recommend the best course of action. Make sure you feel comfortable asking questions and engaging in your treatment plan. Your providers have the knowledge and the skill sets to provide excellent care, but it is just as important that you feel included in the decisions being made and prepared for the treatment road ahead.
Raising Awareness
Whether you are young, old, male, female, part of a high-risk category or not, it is our shared efforts in spreading awareness this month of October and all months following that will successfully raise awareness, education, and resources about breast cancer to every individual diagnosed and every family and friend supporting them. As a society working together, it is within our reach to decrease breast cancer diagnoses within our communities and to improve the outcomes and survival rates of those diagnosed.